April 20, 2011 our world was turned upside down. It was the beginning of our life with SMA (Spinal Muscular Atrophy). A disease we had never even heard of changed our lives forever. We spent the next week at Arkansas Children's Hospital in Little Rock where Miller received test after test and was finally sent home with a terminal diagnosis of SMA Type 1.
Patrick and I promised each other AND Miller that we would make the best of this unfortunate situation and NEVER let Miller be forgotten. We spent 87 precious days with our angel, until his poor little body finally let go. He lost his fight on June 23, 2011. We are at peace knowing he is breathing easy in Heaven and we have faith that we will see him again!
As part of our commitment, we have started The Miller McNeil Woodruff Foundation. Our goal is to raise awareness, fund research and offer support to other families who are faced with this challenge. We will do this by donating the money we raise to Arkansas Children's Hospital, Circle of Life Hospice, and FSMA (Families of SMA).
We thank you for your interest in our story. Together, we can make a difference!
-Patrick and Meredith
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